Santa came to visit on Christmas Eve. The girls didn't seem to notice he looked a lot like Daddy.
Christmas we went to my mom's and had dinner with my whole family, then drove to Philly around 5pm to see Jack. The babies all got so much stuff. I had told my mom, the one thing that would upset me would be if anyone forgot about Jack, or started acting like he was already gone. No one did - I think he got more presents than anyone (which in it's own way was sort of heartbreaking.... ). My mom gave me the best present, a beautiful bracelet made of pink tourmaline (the babies' birthstone) with little silver letters that spell out JACK. I love it so much. I will never take it off.
Santa Baby Katie:
Santa Baby Charlotte:
Santa Baby Jack:
When we got to Philly, Jack was wide awake, like he was waiting for us. The nurses had dressed him in his little Christmas outfit, and Santa had been to visit him too. There were two Polaroids on his bed they'd taken of him with Santa, and 3 presents he'd left for him (a book, a crib mirror and some receiving blankets). It was so sweet. I can't even explain how much it meant to both of us to know he hadn't just been laying in that crib all day. It really touched us that people cared enough to donate those presents, wrap them, volunteer their time on Christmas.
So we spent Christmas night and all yesterday with Jack. He was awake the whole time, he just refused to sleep. He looked really good. He is the sweetest boy. This might sound nuts, but after getting the news we did about Jack, I feel in some strange way a little better. When I would visit him in the past, I would spend the whole time worrying, worrying if he was worse, better, if he had some new symptom, if what he was doing was strange, I would try and read the nurses notes when they weren't looking, eavesdrop on the doctors rounds, make myself sick over what was going on. Now it's like, it doesn't matter. We know, it's bad. Nothing can really make it worse. I have nothing else to fear. I don't have to spend the whole time I'm holding him in a panic that his tube is going to come out. If it does, it does. I can just hold him and visit him and love him.
Jack loved his presents.....
Charlotte did too!!
Katie was not quite as excited....
I hope everyone had a wonderful Christmas. Thank you all again for the kind words and prayers. They helped me more than you'll ever know.